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SC Sickle Cell Disease Registry unites patients, caregivers, and physicians across the South Carolina to share knowledge and experience, accelerate progress and advancements in patient care and treatment.

Resources

These organizations provide some of the following services: genetic counseling, counseling services and community education, emergency client assistance, disease and trait screening, family and individual education and counseling, support groups, and nurse case management.

Local Community Based Organizations and Support Services

Committee on Better Racial Assurance (COBRA)

http://www.cobraagency70.com/home.html

James R. Clark Memorial Sickle Cell Foundation

http://www.jamesrclarksicklecell.org/

LD Barksdale Sickle Cell Anemia Foundation

https://www.ldbarksdalesc.org/

Orangeburg Area Sickle Cell Anemia Foundation

www.orangeburgsicklecellfoundation.com

The B Strong Group

https://thebstronggroup.org/

DRE 365

DRE 365 - Facebook

Shanavia’s Dream Sickle Cell Clinic

www.sdsc.my.canva.site.com

Sickle Cell Lights of Hope

Sickle Cell Lights of Hope - Facebook

Family Connection of South Carolina, Inc.

www.familyconnectionsc.org

Four Giving Hearts

https://www.fourgivinghearts.org/

National Organizations

Sickle Cell Disease Association of America (SCDAA)

https://www.sicklecelldisease.org/

Center for Disease Control and Prevention (CDC)

Sickle Cell - CDC

National Heart, Lung, and Blood Institute (NIH)

Sickle Cell - NIH

American Society of Hematology (ASH)

Sickle Cell - ASH

OneSCDvoice

https://www.onescdvoice.com/

American Sickle Cell Anemia Association (ASCAA)

https://ascaa.org/

Sickle Cell Clinics

Medical University of South Carolina (MUSC)

MUSC Children’s Health – Sickle Cell

MUSC Rena N. Grant Sickle Cell Center (Adults)

Prisma Health

Comprehensive Sickle Cell Disease Program - Midlands *For children and adults*

Comprehensive Sickle Cell Disease Program – Upstate *For children and adults*

Prisma Health Sickle Cell Medical Home (Columbia, SC) *For those 18 years of age and older*

State Agencies

South Carolina Department of Health and Environmental Control (SC DHEC)

South Carolina Department of Health & Human Services (SC DHHS)

South Carolina Department of Disabilities and Special Needs (SC DDSN)

South Carolina Department of Mental Health (SC DMH)

South Carolina Department of Alcohol and Other Drug Abuse Services (SC DAODAS)